26th May 2009

Lounging about in pjs today as off work due to half term. Post comes and there is an appointment at a hospital 1 1/2 hour drive away. We we told that all results etc would be sent to the 'centre of excellence' for our locality but they would just verify the results and may offer suggestions. As they actually want to see hubby I got very panicked - have they seen something else that our local hospital hadn't seen????

Called the support nurse - she is going to tell the docs off at our hospital as they are supposed to say that this centre want to see everyone with the diagnosis and not just see the results.

Had to send urgent emails as I am at work on the day of the appointment and I need to arrange for that day off, more and more agro!